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Mechanistic Deep Dive
Telomere Biology in IPF
- TERT, TERC, RTEL1 mutations
- Short telomeres common in IPF
- Familial IPF often
- Genetic testing for selected families
- Influences transplant decision
MUC5B Polymorphism
- rs35705950 promoter
- Increases mucin secretion
- 30% of population carrier
- Strong risk factor for IPF
- Paradoxically better survival
Antifibrotic Combination
- Pirfenidone + nintedanib not standard
- Small studies modest benefit
- Higher side effects
- Single-agent at max dose first
Recent Trials & Updates
CAPACITY (2011) + ASCEND (2014) â Pirfenidone
- Reduced FVC decline
- FDA approval 2014
INPULSIS-1 + 2 (2014) â Nintedanib
- Reduced FVC decline
- FDA approval 2014
INBUILD (2019) â Progressive Pulmonary Fibrosis
- Nintedanib for non-IPF PPF (HP, sarcoid, RA-ILD, etc.)
- FDA approval 2020 for PPF any cause
- Game-changer
SENSCIS (2019) â Scleroderma-ILD
- Nintedanib for SSc-ILD
- FDA approval 2020 for SSc-ILD
TRAIL1 (2024) â Pamrevlumab (Anti-CTGF)
- Did not meet primary endpoint in IPF
- Other indications continued evaluation
IPF-PRO Registry
- Real-world outcomes
- Long-term antifibrotic data
LOTUSS â Pirfenidone in Scleroderma-ILD
Whole Genome Studies in IPF
- Multiple new loci
- Polygenic risk scores emerging
High-Yield Specialist Points
Cryobiopsy vs Surgical Biopsy
- Cryobiopsy: lower mortality, similar diagnostic yield
- Now preferred when biopsy needed
- Multicenter expertise growing
Familial Pulmonary Fibrosis
- 15-20% of IPF
- Genetic testing offered
- Family screening
- Earlier referral for transplant
Anti-Reflux Surgery in IPF
- Fundoplication for severe GERD + IPF
- Mixed evidence
- Selected cases
- IPFnet GERD trial limited benefit
Pulmonary HTN in IPF
- Group 3 PH
- â Mortality
- Sildenafil INSTAGE
- Inhaled treprostinil (INCREASE) â for ILD-PH
- Refer to PH expert
Lung Transplant Pearls
- Bilateral preferred
- BMI < 30 typical
- Refer at FVC < 70-80% or DLCO < 50%
- 5-year survival ~ 50%
- Lung allocation score (LAS)
ILD + Cancer Risk
- IPF: â lung cancer (esp adenocarcinoma)
- Annual LDCT in selected
- Treatment challenges
Sarcoidosis Refractory
- Methotrexate first-line steroid-sparing
- TNF inhibitors (infliximab, adalimumab)
- JAK inhibitors (tofacitinib, ruxolitinib)
- Apremilast for cutaneous
Cardiac Sarcoidosis
- High mortality
- HRS guidelines
- Steroids + ICD + pacemaker if needed
Renal Involvement Sarcoidosis
- Hypercalcemia (granuloma activated 1α-hydroxylase)
- Granulomatous nephritis
- Steroids
Antiphospholipid Antibody Syndrome + ILD
- Catastrophic APS may have ILD
- Plasmapheresis + anticoagulation
Idiopathic Pulmonary Hemosiderosis
- Recurrent alveolar hemorrhage
- Iron-laden macrophages (hemosiderin)
- Pediatric / young adult
- Steroids + IS
Pearls
- IPF: UIP pattern, older male, antifibrotic standard
- INBUILD 2019: nintedanib for PPF any cause
- NSIP: CTD-associated, better prognosis, IS
- COP: migratory consolidation, dramatic steroid response
- PLCH: smokers, bizarre cysts upper lobe, smoking cessation
- LAM: women + TSC + sirolimus (MILES); avoid estrogen
- PAP: anti-GM-CSF + crazy paving + whole lung lavage
- Sarcoidosis: non-caseating granulomas, BAL CD4/CD8 > 4, Löfgren good prognosis
- Acute exacerbation IPF: 30-day mortality > 50%